Ian’s Friends Foundation: Creating a World Free of Pediatric Brain Tumors

In 2006, Sandy Springs residents Cheryl and Phil Yagoda, founders of Ian’s Friends Foundation (IFF), embarked on a journey with a vision few can imagine: to eradicate pediatric brain tumors. Nearly two decades later, their determination remains unwavering, spurred by the personal experience of their son Ian, diagnosed with an inoperable brain tumor as a toddler.

“Those three words – ‘We found something’ – changed our lives forever,” the Yagodas recall. Faced with limited treatment options, they decided to take action. They learned that pediatric brain tumors are the leading cause of cancer-related deaths in children. Yet, less than 1% of federal cancer research funding is dedicated to pediatric brain tumors. This chilling statistic motivated the couple to launch IFF, raising awareness and funding critical research.

A Groundbreaking Approach to Finding a Cure

IFF has created one of the most innovative initiatives in finding a cure for any disease.  The biennial WhatIFF Symposium in Atlanta gathers over 50 leading doctors, clinicians, and researchers from top hospitals and universities around the world to collaborate and share research on pediatric brain tumors.  The format is akin to a medical “Shark Tank,” where researchers have five minutes to pitch their ideas, followed by a ten-minute defense. The top three projects, voted on solely by the body of participants, are awarded up to $100,000 each, helping them advance to the point where they can secure substantial grants from agencies like the FDA and NIH.

“Our goal was to create a platform that not only funds research but fosters collaboration,” Phil explains. “We’ve seen promising projects receive multi-millions in additional grants, all because they got their start at WhatIFF.”

How You Can Help

The Yagodas emphasize that IFF’s success is due in large part to community involvement. There are countless ways to contribute; including volunteering at fundraisers and organizing local events like 5Ks or youth pickleball tournaments. “Every dollar raised goes directly to research,” Cheryl notes, highlighting that IFF does not cover indirect institutional costs. “Our mission is too important to let any funding go elsewhere.”

Youth in Sandy Springs are also encouraged to participate. “We love seeing kids get involved,” Cheryl says. “It could be something as small as a lemonade stand or as big as a school fundraiser.”

An Evening of Inspiration

IFF’s single largest fundraising event is their annual Evening of Inspiration, which takes place this year on the evening of Saturday, November 23^rd.  It is a truly moving and fun evening.  Highlights include an auction, entertainment, delicious dinner, and a rocking after party with a DJ.  This year’s entertainment features NYC’s #1 mentalist, Alex Voz.  It is an event not to be missed, and the public is invited to purchase tickets right here.

A Legacy of Hope

When asked about the most rewarding aspect of their journey, the Yagodas don’t hesitate: “Hearing from parents we’ve helped. Knowing we’ve made a difference in the lives of other families facing this terrifying diagnosis means the world to us.”

The Ian’s Friends Foundation has built more than just an organization—it’s created a community of hope, where families affected by pediatric brain tumors can find support, share invaluable information, and contribute to the fight for a cure.

For more information or to get involved with IFF, visit www.iansfriendsfoundation.com.